So I know there are a couple of blog readers who have Lupus so let me know if this sounds about right for how you're treated.
Yesterday afternoon my daughter was in a lot of pain from the Lupus. And I thought she was dehydrated. Her Rheumatologist hasn't given her any pain medication. Has told her to take Gabapentin and Ibuprofen even though she told him most days the only thing she can do in lay in bed in pain. She's taking 2 Lupus medications and Steroids. Nothing is working. They've changed the Lupus medication twice, still not helping.
So she went to the ER yesterday. Right away the nurses are having an attitude with her. One asked, "Why are you crying?" To which my daughter responded with, "Because I'm in pain." The nurse says, "Well there's not much we can do for Lupus pain, so you're just going to have to get used to it."
So she went to the ER yesterday. Right away the nurses are having an attitude with her. One asked, "Why are you crying?" To which my daughter responded with, "Because I'm in pain." The nurse says, "Well there's not much we can do for Lupus pain, so you're just going to have to get used to it."
Wtf? Seriously?
So they, hooked her up to an IV because she was indeed dehydrated and did a chest X-ray and a CT scan. Said nothing had gotten worse, gave her a shot of morphine and sent her home after 7 hours.
She see's the Primary Care doctor on Monday and I'm hoping he either sends her to pain management or gives her something for the actual pain and not just more Gabapentin and anti-anxiety meds. He's also supposed to give her a referral to a Cardiologist.
There have been so many people who are addicted to drugs that go to doctors drug seeking pain meds that doctors don't want to give any pain meds to people who are actually in pain now. Completely insane.
